Part of NINDS’ Parkinson’s Disease Biomarker Program (PDBP), the Data Management Resource (DMR) is an informatics system designed to accelerate the search for Parkinson’s Disease biomarkers by centralizing and standardizing data, making it easier for researchers to collaborate.
"By giving researchers access to data and resources, we hope to stimulate biomarker discovery efforts across the Parkinson’s research community."
Advancing the fight against Parkinson’s through shared data
Parkinson’s disease affects over 6 million people worldwide. While there is no cure, the discovery of biomarkers could help speed diagnoses and improve the quality of life for those who suffer from this progressive disease.
The National Institute of Neurological Disorders and Stroke (NINDS), a leader in biomarker research, needed a way to streamline the process for gathering and analyzing disease data. Calling on our experience in working with both government and private sector organizations, NINDS partnered with Sapient to develop a bioinformatics platform.
Creating a centralized system for greater collaboration
The PDBP DMR is designed to promote knowledge-sharing, collaboration, and simpler access to clinical, imaging, genetic, and biological data. By creating a system of standardized data elements and definitions, researchers are now able to easily compare their data to previous studies and order biosamples for their own research.
Building a strong, united foundation for future Parkinson’s research
Since launching in 2013, the PDBP DMR has greatly improved the efficiency of information sharing and collaboration among NINDS research communities. Today, the program is shedding new light on the causes of Parkinson’s. And the increased access to data supports the efforts of researchers, as they develop new analytical tools to further the discovery of biomarkers in the future.
Award-winning technology that improves collaboration – and people’s lives
Our experience in working with both government and private organizations – and helping them collaborate through new technology – proved extremely valuable in developing the PDBP DMR. The system has been lauded as a prime example of how this type of collaboration can make a difference in people’s lives.
In 2014, the American Council for Technology-Industry Advisory Council (ACT-IAC)’s Excellence.Gov awards recognized this achievement, naming PDBP DMR the “Overall Winner.”
The platform is re-configurable for future disease-specific collaboration efforts. Another example of its technology in use can be seen in the Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system, a database for sharing research on traumatic brain injury. See the case study for our work on FITBIR here.