Federal Interagency Traumatic Brain Injury Research (FITBIR)

Knowledge-Sharing Platform

The Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system accelerates progress in brain injury research by centralizing and standardizing data, making it easier for researchers to collaborate.
  • Program Management

    • Lifecycle Management (SDLC/SELC)
  • Technology

    • IT Strategy and Enterprise Architecture
    • Software Development
    • Enterprise Infrastructure and Operations
  • Consulting Services

    • Business Analysis
    • Business Case Development and Justification
    • Functional and Business Requirements

"Despite the great burden of neurotrauma incidence, developing objective diagnostics and treatments has proven especially challenging for the medical community. Only by combining efforts through initiatives such as the FITBIR database can we hope to make major progress in this field. "

- Col. Dallas Hack

Director, U.S. Army Combat Casualty Research Program

"Uniform data makes it much easier to compare intervention results across a broad range of studies, providing unique insights that are not possible from a single study."

- Matthew McAuliffe, Ph.D

Co-director, FITBIR database

Bringing together military and civilian research on a serious medical issue

Traumatic brain injury (TBI) is the leading cause of death and disability in patients under the age of 44. There is no cure for TBI since the brain does not heal like other injuries, and because no two brain injuries are alike, people can be affected in very different ways.

Since TBI is a major problem for both military and civilian populations, the Department of Defense and the National Institutes of Health dedicate considerable resources to diagnosing and treating it. Both organizations recognized the need for a way to share data and improve collaboration to advance their research on TBI. They partnered with Sapient to build a secure, bioinformatics platform.

Standardizing and sharing data for more effective research

We designed a bioinformatics platform to accelerate research comparing the effectiveness of brain injury treatments and diagnoses. As a central repository of high-quality TBI research data, the database features powerful tools that make it easier for the scientific community to define, access, and share their data. The ability to exchange information is critical to accelerating TBI research.

 

A versatile research platform for today and tomorrow

The FITBIR database builds on a larger effort to create a standardized language of common data elements, making it easier for researchers to share and compare TBI-related information.

The platform provides cost-effective, web-based tools to capture, process, and analyze vast quantities of research data. This project marked a unique collaboration between government agencies, enabling cost efficiencies across the federal government and establishing standardized processes for research outcomes that benefit both the DoD and the NIH.

The platform’s flexible design and configurable architecture make it repurposable for many different types of disease-specific collaboration. This technology has already been used for the Parkinson’s Disease Biomarkers Program, a collaborative research effort housed under NINDS. See the case study here.

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